Little Coen McDade

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Meet Little Coen...

On Thursday June 14, 2018 we received the phone call from the hand doctor who removed a lump from Coen’s hand the day before with the news that it was a malignant tumor.  Monday June 18 Coen had his first visit with the oncologist were the pathology results were confirmed and many more tests were scheduled.  A few days later our worst fears were confirmed, and he was diagnosed with Alveolar Rhabdomyosarcoma. 


Over the past year Coen has undergone 88 rounds of chemotherapy, been hospitalized 12 times (6 planned and 6 unplanned) and 24 radiation treatments to his hand and 24 to his upper arm.  He goes to physical therapy weekly and has a counselor to help him understand what all is going on in his world.  He completed the treatment on June 17, 2019.  Since then he has undergone tests and they have all shown that the cancer is gone, and he is in remission.  Since this type of cancer is a very rare and aggressive form Coen has begun a maintenance program which will consist of a chemotherapy infusion three times a month and a daily chemotherapy pill for the next six months. 


Coen turned 6 this past March and is looking forward to starting Kindergarten this year since he wasn’t able to attend school last year.  Prior to getting diagnosed he was playing soccer and T-Ball which he will begin again soon.  He loves to swim, play video games, do puzzles, and play with his dog.  His hair has started to grow back, and all of his energy and spirit has returned.  While the past year has been very long and hard for him, he never complained and always had a smile on his face and wanted to snuggle. 

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